Atypical hemolytic uremic syndrome (aHUS) tuaj yeem nyob nrog cov kab mob autoimmune, ua rau nyuaj rau kev kuaj mob ntawm cov kab mob tsis tshua muaj ntshav khov, cov ntaub ntawv qhia pom. Cov kev tshawb pom qhia txog qhov yuav tsum tau muaj kev tshuaj ntsuam genetic kuaj los kuaj aHUS hauv cov teeb meem nyuaj, cov kws tshawb fawb tau hais.
Koj tuaj yeem nyob nrog aHUS ntev npaum li cas?
Cov neeg mob nrog aHUS uas muaj ESRD feem ntau raug xa mus rau kev lim ntshav tas mus li, uas yog 5-xyoo txoj sia nyob ntawm 34-38%, nrog kev kis tus kab mob suav txog 14% ntawm cov neeg tuag.. Cov neeg mob no tseem muaj kev pheej hmoo tsis tu ncua ntawm lub raum tsis ua haujlwm ntawm tus kab mob.
Ntau npaum li cas yog atypical hemolytic uremic syndrome?
Qhov tshwm sim ntawm atypical hemolytic-uremic syndrome yog kwv yees li 1 ntawm 500,000 tus neeg hauv ib xyoos hauv Tebchaws Meskas. Daim ntawv atypical tej zaum yuav muaj li 10 npaug tsawg dua li daim ntawv raug.
HUS puas mob hnyav?
Kev nyuaj ntawm aHUS yog qhov hnyav. aHUS ua rau lub cev tsim cov ntshav txhaws ntau dhau, uas ua rau koj cov ntshav ntws qeeb dhau mus rau cov kabmob tseem ceeb.
AHUS puas nkag mus rau hauv kev zam txim?
Ntau tus neeg mob aHUS rov qab los rau hauv lub cev lossis hloov lub raum, ua rau lub raum tsis ua haujlwm. Kev taw qhia ntawm eculizumab tau hloov qhov kev cia siab ntawm aHUS, los ntawm inducing hematologic remission, txhim kho lossis stabilizing lub raum ua haujlwm, thiab tiv thaiv kev ua tsis tiav.
